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🌟 New Episode Alert! 🌟 The latest episode of RARE, a blog by Laura Hulley, Principal Consultant at SciPro, features Tom Pulles, MD, a strategic medical leader with over a decade of experience in rare diseases. Tom has an impressive background with companies like Sanofi, Shire, Ultragenyx, and now Acadia Pharmaceuticals, focusing on Rett Syndrome in Europe. Tom shares his insights on the unique challenges of rare diseases, emphasising the importance of awareness, diagnosis, and collaboration. He discusses the rewarding nature of pioneering treatments and the need for a long-term, patient-focused strategy in this field. Discover Tom's journey and his passion for making a difference in the rare disease community by watching the interview now through the link below: https://lnkd.in/euKeUu46 Thank you, Tom, for your valuable contributions! #RareDiseases #PatientAdvocacy #MedicalInnovation

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Tom Pulles, MD

Medical Affairs / High-Performance Leadership / Strategy / Coaching / Education / Patient Advocacy / Rare Diseases

1mo

Thank you very much Laura Hulley and SciPro for coordinating this and providing me the opportunity to share and discuss this important topic! I truly hope that this will help all the (ultra) rare disease communities around the globe 🙏

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