It’s national awareness week for MS and I wanted to share my personal experience.
I started at Kraft Heinz 18 months ago. An exciting next chapter in my career.
Almost 6 weeks into my new role, I was diagnosed with MS. Reconciling this diagnosis, physical therapy, the healthcare system and trying to land specialist appointments while traveling multiple times a month was pretty brutal. My wife, friends and my new family at KraftHeinz that I confided in were incredibly supportive and lifted me up.
For me it started as what seemed like a pinched nerve, which led to me no longer being able to shoot a basketball which led to a few mris then a spinal tap.
Multiple Sclerosis is treatable but not curable. Everybody’s body and experience is different. For me, it manifests itself in muscle soreness, neck and back pain and being tired. Treatments have advanced significantly and I have a plan in place that is aimed at preventing the disease from progressing.
What has worked for me most is investing in my body — stretching, exercising, movement. I also now carry around a pillbox like my grandparents filled with my medication and vitamins I have been recommended to take daily. Stress is also a trigger for me as it is for everyone. Stress management has been critical for me and do this by ensuring I can be at my kids events, I seek harmony and partnership at work and assume positive intent. I try not to let thoughts manifest too long, I seek to address them and move on. It’s been a real learning experience for me — humbling, enlightening and strangely it’s been motivating.
I rehabbed with PT for about 9 months and started playing basketball again in July. Something I never thought I’d be able to do again. I was actually blessed to share a court with my son Max in December. He killed all us old dudes for the record.
So many people have let me know they know somebody with MS. It was helpful for me to connect with those people and hear what worked for them, what to expect, how to ask doctors the right questions. That made me compelled to share here in the event I can pass that forward.
Everyone’s challenges are different and I feel blessed and fortunate that mine are under control. This is a public shoutout to many of my friends and partners that were patient and supportive when I wasn’t at my best while I was navigating pain, uncertainty, lack of sleep and quite frankly, fear. Every experience you can learn from and I feel stronger and more focused now than I ever have before — lifted up by family, friends, colleagues and being able to do work that I love.
I don’t live with MS. MS lives with me.
Word.
#MSawareness #gratitude #thankyou #livewithintention
Ann Poulose