Great Ormond Street Hospital Charity’s Post

Join us in raising awareness and spreading hope on Duchenne Awareness Day! Together with incredible organizations like our client Parent Project Muscular Dystrophy, we can make a difference for those affected by this rare disease. Learn more about how to get involved. #WDAD2023 #DuchenneActionMonth

30 days out from the JDRF Kansas & Missouri Chapter One Walk in Kansas City and I'm making a personal appeal for my son, your friends, family and colleagues that live with or care for a loved one with Type 1 Diabetes (T1D.) T1D is an autoimmune disease that currently can't be cured. It is on the rise with the number effected doubling every 15 years and increasingly diagnosed in adults (nearly 50% of new diagnosis). Hunter was diagnosed with Type 1 Diabetes nearly 9 years ago on New Year's Eve day 2014 and we had no idea what was ahead of us. Things have changed over the years. How Hunter's body reacts to food, exercise, school tests is different now than when he was first diagnosed. The way he manage has changed too. Newer insulin pumps, more accurate CGMs but T1D is relentless and ever present. With T1D there are no days off, and there is no cure... yet. There is promising research, but it may be years off from being fully vetted and accessible. Between now, and the day there is an accessible cure, we want research to continue to find ways to make care easier and less disruptive. The JDRF One Walk is one of the major fundraisers and a great opportunity where you can participate to help fund research that impacts the lives of millions of children, adults and families challenged by T1D every day. Here's how you can help: Join Hunter's Crew: https://lnkd.in/gP8SkvNH Buy a Hunter's Crew Tee Shirt: https://lnkd.in/gaCSa8jk Enter to win a one-of-a-kind Ford Dark Horse Mustang Convertible! https://lnkd.in/grm379pt We appreciate your support!

The cost of critical illness can be very much alarming especially if we do not have any preparation in line with this uncertainty. 😷 According to the PSA 2022 report, the top 3 causes of death in the country are heart attack, stroke, and cancer. ⚰️ Good thing, these illnesses are covered in our programs here in Pru Life UK. 🤗 Please have your policies check and if you can widen your existing coverage; it will be very much helpful to you and your family. 📕 If you don’t have any yet, I can help you start your own plan with a comprehensive coverage. ✍️ Message me to know more! 🙂

https://lnkd.in/dawGkxDm October ! Breast Cancer awareness month! We all know critical illness can render you bankrupt!. There are very big emergencies in life that not even an emergency fund/ savings and investments can take care of. Not unless you want to start to rebuild your family's lifestyle from scratch. Sign up if you don't want to be left behind. Prudential critical care gotchu covered! Inbox me with the word ' interested' to get you started. Free quote generation too. #pinkoctober. #breastcancerawareness. #wealthprotection. #peaceofmind. #dontbeleftbehind. #financialprotection.

Today is World Parkinson’s Day, a special day dedicated to spreading awareness of PD and coming together to support loved ones with the disease. Many people are not familiar with PD and how it impacts the mind and body — and there are a lot of assumptions and myths about the disease. To help raise awareness, here are ten facts about Parkinson’s disease: https://hubs.la/Q02r3L-10 #WorldParkinsonsDay #Parkinsons #ABCsOfPD

May is ALS Awareness Month. Also known as Lou Gehrig’s disease, this neurodegenerative disease affects nerve cells in the brain and spinal cord, leading to muscle weakness, loss of motor control, and eventually, paralysis. ALS can impact anyone, and the cause of the disease is still largely unknown, making awareness and research crucial. ALS Awareness Month is an opportunity for everyone to get involved in the fight against this devastating disease. Whether through education, fundraising, or volunteering, your support can make a difference. Let's work together to increase awareness, support those affected, and push for advancements in research to find a cure for ALS. #ALSAwarenessMonth #EndALS

I am mad as H3LL 🔥. Last night, I saw tears streaming down my little girl’s face. I had to tell her she had lost her grandpa (he was her cousin but old enough, involved enough and kind enough to be her acting grandpa since she was a baby). Yesterday, I stood by watching this person she and I both love struggle to breathe. He lost that fight last night against lung cancer.🫁 He isn’t the first in my family to die from lung failure. Six other people have been taken from us, too, in the last two decades - just from different manifestations - including. pulmonary fibrosis and ARDS. It angers me, especially in these moments of grief and sadness, that the lungs are the stepchildren of medicine and science and rank low on the totem pole of priorities for the United States. I use to believe that the reasons there weren’t treatments that saved lives threatened by lung failure or devices to help buy them time and quality of life was because industry wasn’t interested. I believed that the limited investments in the respiratory space were because resources were scarce and some of the lung issues were not well understood enough to solve. I remember specific conversations with particular people in power who could “do” something and yet, it seems, relatively speaking, little has been done. Now, I believe it is a lack of prioritization by the federal government and understanding and empathy for respiratory patients and their families that there are no or few treatments - and almost no life-saving treatments in the respiratory space. I believe people in positions of power have clearly not experienced anything like this in their own families - which is hard to imagine since a million Americans and counting have died from COVID-induced lung failure. I believe bureaucracy is in the way of our solving lung failure in America. So I ask - if you are not part of the solution - PLEASE GET OUT OF OUR D@MN WAY. We need treatments and devices and we need them now. 🫁 I have a promise to keep to my daughter. Note: opinions are my own

🌟 Today, we celebrate the unyielding spirit of cancer survivors. Each journey, marked by incredible bravery and resilience, is a testament to the human will to overcome. 🎗️ But the battle doesn't end with remission. Recovery and reclaiming one's life and strength is where physical therapy steps in, offering a beacon of hope. 💪 Physical therapy isn't just rehabilitation; it's a journey back to reclaiming the quality of life that every survivor deserves. It's about restoring function, enhancing strength, and fostering independence. Whether it's regaining the ability to perform daily tasks or finding new ways to enjoy activities loved before, physical therapy is a crucial step in the survivorship journey. 🏋️♂️🚴♀️ To all the warriors out there, remember: your strength is monumental, your resilience is inspiring, and your journey matters. Let's embrace the role of physical therapy in healing and moving forward, stronger together. 💖 #SurvivingCancer #PhysicalTherapy #StrengthInSurvival #EvergreenPT #BigRapidsMI #ClareMI #GladwinMI #HarrisonMI #MidlandMI

Sickle cell disease ("SCD") is an extremely painful blood disorder that disproportionately impacts Black people. So many of us have family members or close friends who are impacted by the disease, yet we don't talk about it. How do you explain to an #employer that #stress and #overwork can cause an SCD crisis, resulting in hospitalization and possibly death? It is hard. In an environment rife with systemic racism, how do you explain to an ER doctor that you are experiencing an SCD crisis and are in so much pain that you need narcotics to bring your pain down from a 10 to a 9. How do you explain that you are not "drug seeking", but in excruciating pain? It is hard. We have to talk about SCD to break the #stigma and educate others (yes, including doctors) about impact of the disease. My brilliant and beautiful friend, CONNELLA GUILFORD, recently did just that! She is one of the strongest and most amazing people I know! Please read or watch. Also, follow her on Instagram to check out her upcoming podcast on the topic! #sicklecelldisease #sicklecellawareness #letstalkaboutit #breakthestigma #healthequity #healthcare #amazingpeople #beatingtheodds