Myasthenia Gravis Association

Join us for our July Virtual Monthly Meetup Monday, July 22, 2024 from 6:30-7:30pm CST Register: https://lnkd.in/gbsQ2kGc UCB is proud to have Eduardo De Sousa, MD, FAAN, FAANEM share educational information about a targeted treatment with the MGA gMG community. The webinar will include key details about an FDA-approved treatment for adults with gMG who are anti-AChR (acetylcholine receptor) antibody positive, including how it works, what patients and caregivers can expect with this treatment, and helpful points for how to talk with a doctor about gMG symptoms and treatment. #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures See less

Join argenx and the MGA as Dr. Jeffrey Guptill provides an update on the Adapt Seron trial. Thursday, July 18 from 5:00-6:00pm CST Register: https://lnkd.in/d6SqheDF Adapt seron is a phase 3 study to evaluate the efficacy of safety of Efgartigimod IV in patients with AChr – gMG, including MuSK-Ab, LRP4-Ab, and gMG patients with no identifiable autoantibodies. Dr. Jeffrey Guptill is Neuromuscular Franchise Lead in Clinical Development at argenx. In this role he oversees the late-stage clinical development programs for efgartigimod (FcRn inhibitor) and empasibrupart (C2 complement inhibitor). He is also Adjunct Associate Professor of Neurology at Duke University School of Medicine. #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures

At the Myasthenia Gravis Association we have long said we are boots on the ground, meeting individuals with MG where they are at in there journeys. We like to get out and about, meet people face to face, connect and learn about them. And this past week we did just that, we hit the pavement from sun up to sun down. From Chamber meetings to support groups to an awareness event to our clinics, our staff and volunteers were able to dig those boots in and serve our communities. We loved seeing so many people. if we haven’t seen you for awhile we hope you’ll join us either in person or online. Be sure to check our calendar at www.mgakc.org for a listing of events. #rarekc #careaboutrare #missouricures #myastheniagravis #ihaveheardofmg #mgawareness

Summer brings long days, sunshine, and plenty of opportunities for fun. For those with MG, it's important to balance enjoying the season while managing symptoms. In this weeks blog, we share some ways to enjoy summer, despite the heat. Blog- https://lnkd.in/gH9hAW2a #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures #MGADigest See less

Is there a Group near you this week? Check out our calendar for more information here: https://lnkd.in/eNPE7XW #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures

The Myasthenia Gravis Association is sad to share the passing of Larry Paxson, Wichita Support Group Leader. Larry and his wife Dana have been generous supporters of the MGA for over 10 years. We are thinking of Larry's family and our Wichita Support Group during this difficult time.

Join us in celebrating Kathryn Clemens, our Community Program Coordinator in Saint Louis. Happy Birthday Kathryn! #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures #happybirthday

Help us celebrate a #WednesdayWIN Lisa has started advocating for themselves with more confidence! “I kept asking questions and offering my thoughts even though at times I felt dismissed by my doctors. We’re all human and deserve grace but those of us with a rare disease need to be heard. Really heard.” -Lisa We love to hear your accomplishments no matter how big or small! #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures

Be sure to join us at Coins for a Cause! Today July, 10th from 3:00pm-10:00pm at Up Down Kansas City | 101 Southwest Blvd. Kansas City, MO #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures

Awareness month may be over however we are committed to raising awareness year round! We were busy today getting baskets of information ready to drop off at Neurology offices. #careaboutrare #rarekc #IhaveheardofMG #mgatriplecrownshowdown #missouricures #worldwithoutmg