By working together with passionate doctors and researchers focused on making progress on this disease, children with DIPG will finally be able to look forward to a bright future. We are accepting applications for fellowship grants until September 13, 2024. This grant is intended to attract and support promising scientists embarking on careers involved in DIPG research. For more information, visit: https://lnkd.in/gytyQ4mm #DIPGResearch #ChadTough #DefeatDIPG
ChadTough Defeat DIPG Foundation
Fundraising
Saline, Michigan 1,286 followers
Rallying to cure pediatric brain cancer with an emphasis on DIPG.
About us
In the fight for a DIPG/DMG cure, we help patients and families by funding game-changing research and providing navigation throughout their journey. Brain cancer is killing more kids than any other type of cancer. DIPG represents 10% of all pediatric brain tumors but nearly 50% of all pediatric brain cancer deaths. Our vision is for DIPG to no longer be a death sentence. DIPG is a brain tumor found in the Pons of the brain stem. Children are typically diagnosed between the ages of 5-7 with around 300-350 new cases per year in the United States. The median survival rate is 9 months from diagnosis, only 10% of patients survive 2 years from diagnosis. Long term survivors total less than 1%. What makes DIPG so difficult to treat is not only its location (a very small area of the brain stem responsible for many critical bodily functions including breathing, swallowing, respiration, equilibrium and eye movement) but also the fact that it is “diffuse” (as opposed to looking like a solid mass or ball, it spreads out and mixes with healthy cells, it is sometimes described as looking “marbled”). The only standard of care to treat DIPG is radiation. Radiation is used to shrink the tumor giving temporary relief of symptoms but after a period of time the tumor typically grows back. As it grows, it cuts off those critical bodily functions until the child can no longer swallow or breathe and eventually succumbs. You cannot surgically remove DIPG and until very recently it was considered dangerous to even biopsy. DIPG presents a great challenge, it is an extremely difficult and complex disease. We believe a cure will come from talented, passionate people working collaboratively. It will come from “Thinking outside the Box” and taking some risks. It will come from small breakthroughs happening in many different areas of medicine. The ChadTough Foundation is committed to funding this work.
- Website
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http://chadtough.org
External link for ChadTough Defeat DIPG Foundation
- Industry
- Fundraising
- Company size
- 11-50 employees
- Headquarters
- Saline, Michigan
- Type
- Nonprofit
- Founded
- 2015
Locations
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Primary
Get directions
PO BOX 907
Saline, Michigan 48176, US
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Get directions
201 W Michigan Ave
Saline, Michigan 48176, US
Employees at ChadTough Defeat DIPG Foundation
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Ann Friedholm
Chief Executive Officer at ChadTough Defeat DIPG Foundation
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Jennifer DeGregorio
Director Of Communications at ChadTough Defeat DIPG Foundation
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Tammi Carr
Co-Founder of ChadTough Defeat DIPG Foundation, Raising Funds and Awareness for Pediatric Brain Cancer Research
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Emilie Kaster
Finance Associate at ChadTough Defeat DIPG Foundation
Updates
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We are adding a part-time Social Worker to our My DIPG Navigator team to support our families in the program, working alongside our incredible team of Nurse Navigators! You can find more information about the role here: https://bit.ly/3WfqlgS Please share this position with anyone you think might be interested. Experience working with DIPG/DMG families is highly desired! #DefeatDIPG #ChadTough #MyDIPGNavigator #DefeatDMG
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ChadTough Defeat DIPG Foundation, along with its Family Partners and Research Partners, is excited to announce it has funded eight new DIPG/DMG research projects totaling $4 million over the next three years. This commitment is the largest round of funding since the foundation’s inception in 2015. We are thrilled to award grants to the following researchers: GAME-CHANGER GRANTS ▪️ Dr. Peter Dirks and Dr. Cynthia Hawkins, Hospital for Sick Children (Co-funded by The DEKM Fund and Elle’s Angels Foundation) ▪️ Dr. Mariella Filbin, Dana Farber Cancer Institute (Co-funded by the Violet Foundation, The DEKM Fund, Tough2gether, and RunDIPG) ▪️ Dr. Carl Koschmann, University of Michigan (Co-funded by the SoSo Strong Pediatric Brain Tumor Foundation) ▪️ Dr. Pavithra Viswanath, University of California, San Francisco (Co-funded by the Violet Foundation) NEW INVESTIGATOR GRANTS ▪️ Dr. Jean Bertoldo, Children’s Cancer Institute (Co-funded by the Violet Foundation) ▪️ Dr. Kumar Pichumani, Houston Methodist Hospital Research Institute ▪️ Dr. Deblina Sarkar, Massachusetts Institute of Technology (Co-funded by Lace ‘em Up for Libby, Magic for Maddie, Storm the Heavens Fund, and Violet Foundation) ▪️ Dr. Matthew Waitkus, Duke University Learn more here: https://lnkd.in/g9fvarwq #DIPGResearch #DefeatDIPG #DefeatDMG #ChadTough
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Registration for RunTough is open and we need your help to turn the map orange! Can you help us get three registrants per state? Join us for RunTough for ChadTough Defeat DIPG, RunTough for Team Owen, or RunTough for ColtStrong! All #RunTough races benefit ChadTough Defeat DIPG to fund game-changing DIPG research. Learn more at chadtough.org/runtough. #ChadTough #DefeatDIPG #DefeatDMG
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ChadTough Defeat DIPG is thrilled to be a Gold Sponsor for the 21st International Symposium on Pediatric Neuro-Oncology held this weekend in Philadelphia. The event brings together researchers, clinicians, and healthcare professionals from across the globe to exchange the latest research findings, treatment strategies, and advancements in the field. Through collaboration, we can improve outcomes for children faced with pediatric brain tumors. If you are attending, stop by our booth or say hello to our Nurse Navigators, Daniela and Lauren! #ISPNO2024 #DefeatDIPG #DefeatDMG #ChadTough
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We are thrilled to officially announce RunTough is back in 2024 for our 11th annual race, and there are more ways than ever to get involved! This family-friendly 5K and 1 Mile Fun Run began as a community run in Saline, MI, to uplift the Carr family and raise funds for unknown medical expenses shortly after Chad’s diagnosis. We are excited to see everyone come together once again on Sunday, September 29, in Saline, MI, and virtually! With additional events in honor of Owen Petrzelka in the Chicago area and Colt DelVerne in Ohio, it’s easier than ever to participate in Childhood Cancer Awareness Month and make a real difference in the fight against the most lethal form of brain cancer. Register for RunTough for ChadTough Defeat DIPG by Wednesday, July 31, to secure early bird pricing. *Please note that each race has different deadlines. Learn more here: https://lnkd.in/gGSYpZhe
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Happy Father's Day to all of the incredible fathers out there, especially those who have endured the loss of a child. For those in the club no one wants to be in, we know this day is filled with mixed feelings as you remember the child who can no longer celebrate with you. This day may never be the same, but please know that we are forever inspired by the strength it takes to be a father in these unimaginable circumstances. Today we celebrate the laughter, love, and precious moments that will forever live in your heart. Your child's spirit continues to shine through you. #FathersDay #DefeatDIPG #ChadTough
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“A better understanding of how these tumors evade treatment means that we’re better equipped to develop new strategies to beat them at their own game and improve the outlook for kids with this disease.” ChadTough Defeat DIPG is honored to fund research like this that helps bring us one step closer to a cure. Learn about this study led by researchers at the University of Michigan Health Rogel Cancer Center: https://lnkd.in/gtTyTkUZ
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Today on World Brain Tumor Day we are thinking of Emerson and her family as she battles brain cancer for the second time. https://lnkd.in/gtjj9Pcz #WorldBrainTumorDay #DefeatDIPG #ChadTough
Emerson the Brave
https://www.youtube.com/
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We are looking forward to hosting the 11th annual RunTough for ChadTough Defeat DIPG on Sunday, September 29, 2024, in Saline, MI. Started in honor of Chad Carr, this race has inspired thousands of registrations since its inception in 2014. It has continued to grow as a family-friendly 5K and 1M Fun Run in Michigan and has expanded to include events hosted by our Family Partners in Illinois and Ohio. We still have sponsorship opportunities available for all RunTough events, including RunTough for Team Owen in Oak Park, Illinois, and RunTough for Team Colt in Sylvania, Ohio. Learn more about all the RunTough races at chadtough.org/runtough. If you are interested in sponsoring, please reach out to Karin Bouw at karin@chadtough.org for more information.
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